# Mallory Smith

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**Mallory Beatrice Smith** (October 12, 1992 – November 15, 2017) was an author and [cystic fibrosis](/source/Cystic_fibrosis) advocate.

## Early life

Smith was born to Mark Smith and [Diane Shader Smith](/source/Diane_Shader_Smith) on October 12, 1992, and diagnosed with [cystic fibrosis](/source/Cystic_fibrosis), a "progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time", at age 3.[2][3][4] The disease cripples by inhibiting oxygen and nutrient absorption required for growth and energy[5] with treatment regimens of more than 60 pills per day and waking up repeatedly for antibiotic IV treatments and lung exercises, yet Smith was determined to live well.[6] She maintained a 4.3 grade point average,[2] was captain of three different team sports, and was elected prom queen.[6]

By age 15, bacteria had colonized Smith's lungs, including a form of [Burkholderia cenocepacia](/source/Burkholderia_cenocepacia) which mutated over a decade of antibiotic treatment from a normal vegetable bacteria into a rare, aggressive [superbug](/source/Antimicrobial_resistance) with no known treatment.[7] This allowed her to push for experimental options with [bacteriophage](/source/Bacteriophage) treatment, which engineers viruses to destroy bacteria.[7] She attended [Stanford University](/source/Stanford_University), graduating Phi Beta Kappa,[6][8] majoring in human biology with a concentration in environmental anthropology.[2] She also worked as a senior producer on Green Grid Radio, an environmental podcast featured on KCRW, National Radio Project and State of the Human.[9] After graduation, Smith became a cystic fibrosis advocate and began work as a writer.[8] However, her lungs took a turn for the worse in 2012 and she received a lung transplant on September 11, 2017.[5] Unfortunately, the superbug had survived in her throat[8] and she died on November 15, 2017, at age 25 before bacteriophage treatment could be successfully administered. She provided lung samples to further the research for other patients.[3]

## Advocacy

Smith's determination to live with joy despite her physical prognosis was inspirational to research and the cystic fibrosis community[2][5][7] Smith's outlook is credited as a driving force behind two cystic fibrosis charities. "An Evening in Mallory’s Garden" was started in 1995 and has raised more than $5 million[9] while [Lunges4Lungs](/source/Lunges4Lungs) gained national awareness including corporate support from companies like [Lululemon](/source/Lululemon)[5] and star support including [Katy Perry](/source/Katy_Perry).[6]

## Works

In 2016 she co-authored *[The Gottlieb Native Garden: A California Love Story](/source/The_Gottlieb_Native_Garden:_A_California_Love_Story)* with horticulturist [Susan Lenman Gottlieb](/source/Susan_Lenman_Gottlieb) which was published by the National Wildlife Federation,.[10] Her memoir, *Salt in My Soul: an Unfinished Life*, was posthumously edited and published at her direction by her mother, writer/publicist [Diane Shader Smith](/source/Diane_Shader_Smith) through [Penguin Random House](/source/Penguin_Random_House) on March 12, 2019.[11][9] It was subsequently optioned for production before its publication by [The Invisible War](/source/The_Invisible_War) and [The Hunting Ground](/source/The_Hunting_Ground) Oscar-nominated directors [Kirby Dick](/source/Kirby_Dick) and [Amy Ziering](/source/Amy_Ziering).[9]

## List of works

- *The Gottlieb Native Garden: A California Love Story*, National Wildlife Federation, First edition October 25, 2016, ISBN 0692783393
- *Salt in My Soul: an Unfinished Life*, Penguin Random House, Spiegel & Grau, First edition March 12, 2019, ISBN 1984855425

## References

1. LaBonte, Michelle (2022). ["The Value of the Patient Voice: A Review of *Salt in My Soul* by Mallory Smith"](https://www.cambridge.org/core/journals/cambridge-quarterly-of-healthcare-ethics/article/abs/value-of-the-patient-voice-a-review-of-salt-in-my-soul-by-mallory-smith/59884B60D964671F5E32FEFC7AB14F12). *Cambridge Quarterly of Healthcare Ethics*. **32** (3): 443–446. [doi:10.1017/S0963180122000433](https://doi.org/10.1017/S0963180122000433). [PMID 36366957](https://pubmed.ncbi.nlm.nih.gov/36366957). [S2CID 253457334](https://api.semanticscholar.org/CorpusID:253457334) ["Michelle LaBonte"](https://histsci.fas.harvard.edu/people/michelle-labonte). *Department of the History of Science, Harvard University*

1. ["In the Spotlight: Mallory Smith"](https://web.archive.org/web/20190327085611/https://www.cff.org/News/News-Archive/2013/In-the-Spotlight--Mallory-Smith/). *www.cff.org*. Cystic Fibrosis Foundation. Archived from [the original](https://www.cff.org/News/News-Archive/2013/In-the-Spotlight--Mallory-Smith/) on March 27, 2019. Retrieved March 6, 2019.

1. ["Beverly High Graduate, Cystic Fibrosis Advocate Mallory Smith Dies At 25"](https://web.archive.org/web/20190327111932/https://bhcourier.com/2017/11/16/beverly-high-graduate-cystic-fibrosis-advocate-mallory-smith-dies-at-25/). Beverly Hills Courier. November 16, 2017. Archived from [the original](http://bhcourier.com/2017/11/16/beverly-high-graduate-cystic-fibrosis-advocate-mallory-smith-dies-at-25/) on March 27, 2019. Retrieved March 6, 2019.

1. Bethesda, Cystic Fibrosis Foundation 4550 Montgomery Ave Suite 1100 N. & Md 20814301-951-4422 800-344-4823. ["About Cystic Fibrosis"](https://www.cff.org/What-is-CF/About-Cystic-Fibrosis/). *www.cff.org*. Retrieved 2020-02-29.

1. Gardner, Karen (September 20, 2017). ["CF Patient, Recovering from Double Transplant, Inspires 'Lunges4Lungs' Fundraiser"](https://cysticfibrosisnewstoday.com/2017/09/20/cf-patient-recovering-from-double-transplant-inspires-lunges4lungs-fundraiser/). Cystic Fibrosis New Today. Retrieved March 6, 2019.

1. Harward, Jason (December 13, 2017). ["Facing mortality: a young woman's lifelong battle with illness"](https://highschool.latimes.com/beverly-hills-high-school/facing-mortality-a-young-womans-lifelong-battle-with-illness/). HS Insider Los Angeles Times. Los Angeles Times. Retrieved March 6, 2019.

1. Boodman, Eric (November 12, 2017). ["To save a young woman besieged by superbugs, scientists hunt a killer virus"](https://www.pbs.org/newshour/health/to-save-a-young-woman-besieged-by-superbugs-scientists-hunt-a-killer-virus). PBS. NewsHour Productions LLC. Retrieved March 6, 2019.

1. Abcarian, Robin (March 8, 2019). ["A memoir unlike any you've read: A young woman's inspiring struggle with her invisible killer"](https://www.latimes.com/local/abcarian/la-me-abcarian-mallory-20190308-story.html). *[Los Angeles Times](/source/Los_Angeles_Times)*. Retrieved 2019-03-08.

1. Siegel, Tatiana (February 19, 2019). ["'Hunting Ground' Directors to Make Film Based on Memoir of Cystic Fibrosis Victim"](https://www.hollywoodreporter.com/news/hunting-ground-team-sets-mallory-smith-cystic-fibrosis-doc-1187843). Hollywood Reporter. Retrieved March 6, 2019.

1. Foster, Christine (March 20, 2018). ["Farewells: Young Alumna and Writer"](https://stanfordmag.org/contents/young-alumna-and-writer). Stanford Magazine. Retrieved March 6, 2019.

1. ["Salt in My Soul By Mallory Smith"](https://www.penguinrandomhouse.com/books/607965/salt-in-my-soul-by-mallory-smith/). *Penguin Random House*. Retrieved March 6, 2019.

## External links

- ["Salt in My Soul"](https://www.youtube.com/watch?v=aGxCjASgMB8). *YouTube*. YouTube Movies & TV. 2022.
- ["Salt in My Soul discussion with Rainn Wilson"](https://www.youtube.com/watch?v=-YHuIdMEgEE). *YouTube*. Salt in My Soul. February 8, 2022. (sponsored by Cystic Fibrosis Research Institute; discussion moderated by [Rainn Wilson](/source/Rainn_Wilson) with 7 other participants: Will Battersby (director of documentary), Diane Shader Smith, Micah Smith (Mallory's brother), Maya Humes (Mallory's friend), [Gunnar Esiason](/source/Boomer_Esiason#Personal_life), [Steffanie A. Strathdee](/source/Steffanie_A._Strathdee), and [Benjamin Chan](/source/Benjamin_Chan))

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Adapted from the Wikipedia article [Mallory Smith](https://en.wikipedia.org/wiki/Mallory_Smith) by Wikipedia contributors ([contributor history](https://en.wikipedia.org/wiki/Mallory_Smith?action=history)). Available under [Creative Commons Attribution-ShareAlike 4.0 International](https://creativecommons.org/licenses/by-sa/4.0/). Changes may have been made.
