# IPPOSI

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'''IPPOSI''', the Irish Platform for Patients’ Organisations, Science & Industry, is a  Company Limited by Guarantee and a charity based in Dublin.  It describes itself as "a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health policy and innovation."<ref>{{cite web |title=LEGISLATION COMPLIANCE |url=https://www.ipposi.ie/about-us/compliance/ |website=IPPOSI |accessdate=28 June 2020 |archive-date=28 June 2020 |archive-url=https://web.archive.org/web/20200628072050/https://www.ipposi.ie/about-us/compliance/ |url-status=dead }}</ref>

Laura Brady is the Chief Executive.  It is particularly focussed on issues associated with the use of patients' data.<ref>{{cite news |title=IPPOSI's Derick Mitchell on putting patients first |url=https://www.techcentral.ie/ipposis-derick-mitchell-on-putting-patients-first/ |accessdate=28 June 2020 |publisher=Tech Central Ie |date=13 December 2019}}</ref> It runs a Patient Education Programme concentrating on [clinical trial](/source/clinical_trial)s  Health Technology Assessment, health information, connected health and rare diseases <ref>{{cite news |title='I was put on a cancer drug trial... and later discovered it actually made the cancer progress faster' - Irish woman (46) |url=https://www.independent.ie/life/health-wellbeing/living-with-cancer/i-was-put-on-a-cancer-drug-trial-and-later-discovered-it-actually-made-the-cancer-progress-faster-irish-woman-46-36158053.html |accessdate=28 June 2020 |publisher=Independent ie |date=22 September 2017}}</ref> and on how drug treatments are financed.<ref>{{cite news |title=Fibromyalgia: learning about my illness known as the F-word |url=https://www.irishtimes.com/life-and-style/health-family/fibromyalgia-learning-about-my-illness-known-as-the-f-word-1.2802027 |accessdate=28 June 2020 |publisher=Irish Times |date=4 October 2016}}</ref>  It works with the [European Patients' Academy on Therapeutic Innovation](/source/European_Patients'_Academy_on_Therapeutic_Innovation) (EUPATI) and [Dublin City University](/source/Dublin_City_University)'s  Centre for eIntegrated Care.<ref>{{cite news |title=What will DCU's Centre for eIntegrated Care do for Irish healthcare? |url=https://www.siliconrepublic.com/innovation/ceic-dcu-pamela-hussey |accessdate=28 June 2020 |publisher=Silicon Republic |date=8 June 2018}}</ref><ref>{{cite web |title=Centre for eIntegrated Care| url=https://www.dcu.ie/ceic}}</ref>

It runs conferences and seminars on a variety of topics including data protection.<ref>{{cite news |title=Should your medical data be off the record? |url=https://www.irishtimes.com/business/technology/should-your-medical-data-be-off-the-record-1.3193423 |accessdate=28 June 2020 |publisher=Irish Times |date=24 August 2017}}</ref>

It is associated with the [European Platform for Patients’ Organisations, Science & Industry](/source/European_Platform_for_Patients%E2%80%99_Organisations%2C_Science_%26_Industry), based in [Brussels](/source/Brussels) which was established in 1994 as part of the initiative to promote patients' rights.<ref>{{cite journal |title=Patients Rights in Europe |journal=European Journal of Health Law |date=2000 |volume=7 |pages=1–3 |doi=10.1163/15718090020523007 |pmid=12542023 |url=https://heinonline.org/HOL/LandingPage?handle=hein.journals/eurjhlb7&div=8&id=&page= |accessdate=28 June 2020|last1=Fallberg |first1=L. H. |issue=1 |url-access=subscription }}</ref>

== References ==
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Category:Health activism
Category:Organisations based in Dublin (city)
Category:Medical and health organisations based in the Republic of Ireland

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Adapted from the Wikipedia article [IPPOSI](https://en.wikipedia.org/wiki/IPPOSI) by Wikipedia contributors ([contributor history](https://en.wikipedia.org/wiki/IPPOSI?action=history)). Available under [Creative Commons Attribution-ShareAlike 4.0 International](https://creativecommons.org/licenses/by-sa/4.0/). Changes may have been made.